Hello! This blog is about my daughter Hailey (currently 12 years old) and her experiences living with auditory processing disorder. Auditory Processing Disorder is Hailey's primary issue, however she has also been given the labels Sensory Processing Disorder, Dyslexia, Visual Processing Disorder, Mixed Expressive Receptive Language Disorder and Phonology Disorder at various points in her life.

Sunday, May 12, 2013

"Same Journey Different Paths" --- I Co-Wrote a Book about Auditory Processing Disorder


So I suppose it is about time to mention on my blog, and not just the blog's Facebook page, that a book I wrote with 14 other authors about auditory processing disorder is about to be published:





Authors from around the world have come together to share their lives or that of their children living with Auditory Processing Disorder.
Description
"Once we were all mothers and children from around the world dealing with auditory processing disorder on our own; we felt all alone on our journeys, not knowing anyone else with this disability. There wasn’t a lot of information available to us about how to deal with this disorder and we were looking for advice, help, and just someone who understood what we were going through.

Then one day, in 
our own times and ways, we found each other via the internet and more specifically Facebook. We used this well-known social networking site to establish and/or join support groups for people with auditory processing disorder. Through these groups, we started talking to one another, sharing advice, telling our stories, and developing a relationship with each other. These support groups became our lifeline where we knew we could turn to others who would be there for us.

Through the internet, we who live far away from one another and have never even met each other in person as of the printing of this book, have grown to care for one another and each of our families. We laugh, we cry, we share our successes and help find answers to help each other. We came together to write this book in the hope it will help others and no one will have to feel alone again on this journey."

Same Journey Different Paths official website: www.apdbook.com



I have loved the entire process of working on this book from writing it and editing it to managing the process with my co-managers Nancy Pittman Outten and Bonnie Landau Weed.

It will be available for purchase in June from Stoelting Company (I'll post a link to them as soon as it is available) as well as on Amazon, and will be available both in paperback and as an e-book.


PS:  As a bonus, one of Hailey's drawings will be in the book!  It's just a sketch she did, but it is so wonderfully full of emotion. 

5 comments:

  1. Do you or any subscribers have experience with your child exhibiting extreme anger at times? We have a 14 year old with fairly severe APD and she has outbursts of extreme anger. They can be triggered by what seem to us fairly trivial daily problems but they mushroom into some very ugly situations. We can't figure out if this is part of the baggage that goes with APD or if there is a separate problem we need to look at. We are at the end of our rope.

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  2. I am so sorry; that is very difficult. We do not have that issue with Hailey, but I do know of others who do. My guess is that it has something to do with their frustration levels at not understanding or being understood and the exhaustion from all the energy it takes just to keep up with everything. I do know that anxiety and depression are common problems for people with learning disabilities and/or processing disorders. Some people have found help from talk therapy with a psychologist who specializes in working with children and teens with learning disabilities and/or processing disorders. Others have found that a change in environment (such as to a different more accommodating school or to homeschooling) has helped. Please also check out our support groups on Facebook. There are hundreds of people on them and they have a variety of experiences and advice. Here is a link to one that I co-admin: https://www.facebook.com/groups/14521230810/

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  3. I sent a request to join that group. Thanks.

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  4. hi there,
    I have just joined the facebook group. my daughter has major anger out bursts and I would love to hear more about that side of things.
    thanks heather griffin.

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    1. Hi Heather, I just sent you a long response to the message on the Facebook group you sent. Please let me know if you didn't receive it. --Bev

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