Hello! This blog is about my daughter Hailey (currently 12 years old) and her experiences living with auditory processing disorder. Auditory Processing Disorder is Hailey's primary issue, however she has also been given the labels Sensory Processing Disorder, Dyslexia, Visual Processing Disorder, Mixed Expressive Receptive Language Disorder and Phonology Disorder at various points in her life.
Showing posts with label central auditory processing disorder. Show all posts
Showing posts with label central auditory processing disorder. Show all posts

Saturday, April 14, 2012

Signs and Symptoms that Your Young Child Might Have Auditory Processing Disorder


We noticed at a young age that our daughter was different.  She was easily overwhelmed and didn’t seem to understand language.  Of course, we had never heard of auditory processing disorder but in hindsight, we realize what we were observing in her were early signs of her auditory processing disorder.*

Here are some snippets of what we saw in her as well as what others (therapists and educators) noticed:

Infancy:
  • Cries whenever her twin cries and won’t stop until he stops.
  • Has staring spells and sensory needs (prefers to sit in her vibrating chair and suck her fingers)

Interventions:  Mom created physical therapy to encourage play, cross body movements, scooting, crawling, and walking.  I also provided visual stimulation, tactile and sensory experiences, and the usual best practices for infant development. (I'm a teacher turned stay at home Mom who likes to study and implement the best practices for raising my children.)

Age 2 1/2: 
  • Has staring spells
  • Petrified of loud sounds (screams, digs fingernails and teeth into Mom’s skin to hold on)
  • Stares blankly when spoken to or responds inappropriately (ex: wipes hands on grass when told  to wipe feet on mat)
  • Complains “baby,baby” when a baby can be heard crying in the distance
  • Complains “rain” and spaces out, sucking fingers with a terrified look on her face when we are in the car and it is raining
  • Cannot listen to a story be read: just points to pictures and names objects, getting frustrated from   Mom trying to actually read the story
  • Repeats last word said to her (echolalia)
  • Doesn’t like television
  • Confuses words (ex. Says “juice” for “milk”)
  • Speaks only 1 word utterances

Interventions: In home speech therapy (Diagnoses of Speech and Language Delay) and occupational therapy (Diagnosis of Sensory Integration Disorder) 1x per week with daily reinforcement at home, listening therapy (“The Listening Program”), special education consultant (Diagnosis of At Risk for Learning Delays) 1x per month, a daily sensory diet was implemented, and we used picture cards to help with communication.

Age 3 1/2:  (Special Education Preschool: IEP Evaluation: Diagnosis of Young Child with a Developmental Delay in the areas of Communication and Adaptive Behavior):
  • “Hailey demonstrates difficulty with sensory processing and modulation.  She received scores in the definite different range for auditory processing, touch processing, multisensory processing, oral sensory processing, modulation related to body position, modulation of sensory input affecting emotional responses, emotional/social responses, and behavioral outcomes of sensory processing.  Hailey spaces out and stares when she becomes overwhelmed.  She chooses to play with children who are calm.  She becomes overwhelmed by large groups of people and in noisy environments.”
  • “Hailey’s speech is 50% intelligible to an unfamiliar listener when the context is not known and 70-80% intelligible when the context is known.”
  • “Hailey does not show understanding of part/whole relationships, follow two step related commands without cues, or identify pronouns.  Hailey has difficulty understanding negatives in sentences, making inferences, and difficulty in categorizing objects in pictures….She does not tell how objects are used, answer questions logically, or use words to describe a physical state.  Hailey is very quiet and withdrawn at school.  Hailey rarely talks to peers or in a group.  She needs to be encouraged to use her words and not just nod her head.  Questions need to be repeated for her.   She has trouble blocking out background noises.  Hailey has word retrieve, decoding, and short term memory issues.”
  • (I have to add that she was noticed as being "great at puzzles", "hard working", "kind", and "interested in new things".)

Interventions:  2x per week special education preschool (1/2 day) with focus on speech therapy, occupational therapy, and social skills training; continued sensory diet.

Age 4: (Special Education Preschool: IEP Evaluation: Diagnosis of Speech or Language Impairment):
  • “Hailey continues to use incomplete sentences, which contribute to some of her unintelligibility….Hailey has not yet mastered her goal to initiate contact with the other children in her classroom and socialization skills are one of her biggest concerns.  She has not been observed consistently responding to other children’s initiative and chooses to play alone or alongside other children with little verbal interaction.  Hailey rarely verbalizes in large group activities unless prompted to do so and when she speaks she uses a very quiet voice.”

Interventions:  4x per week special education preschool (1/2 day) with focus on speech therapy, social skills training, and academic preparations; continued sensory diet.

Age 6: (Private Speech and Language Evaluation: Diagnosis of Mixed Expressive/Receptive Language Disorder):
  • “Hailey’s overall speech intelligibility is approximately 75% in a familiar context and around 65% in an unknown context.”
  • “Hailey successfully completed tasks with one or two commands and location concepts.  She had difficulty when the commands increased in length, with sequence concepts (ex. second, middle, fourth), and with inclusion/exclusion concepts (ex. all but one, neither)."
  • “She demonstrated significant difficulties in recalling sentences.  She was able to recall sentences of up to 5 words successfully however she was observed to paraphrase sentences (ex. The given sentence: “The rabbit was not put in the cage by the girl.”  Hailey said: “The rabbit didn’t got in the cage because the girl.”)  She had difficulty imitating sentences of 5+ words in length. “
  • “It was observed that when Hailey had difficulty retrieving a word, she would often use the word “helicopter"."
  • "Hailey is a great little girl who enjoys interacting with people and exploring items in her environment.  She demonstrated appropriate eye contact and enjoyed carrying on conversations with the therapist.  She was observed to have difficulty answering questions and maintaining topics.  Hailey would often look to her mom for support when answering questions, ex. “What did you do at the birthday party?” and “What is your friend’s name?”
  • “Hailey has significant difficulties with working memory tasks.  She was observed to recall the last number of a 2 number sequence (ex. “3-8”, Hailey: “8”).  However, she was able to recall a number sequence of 3 numbers when movement was included (ex. she could recall three numbers accurately when she walked one step for each number). She was able to recall a number sequence backwards of 2 numbers when incorporated with walking backwards.”
  • “Hailey was able to blend syllables (ex. sail   boat = sailboat) with maximum cues and model with 1/5 accuracy.  She was able to detect rhymes (ex. cake-lake) with maximum cues and a model with 3/6 accuracy.  Hailey was able to identify the initial phoneme in a word given maximum cues and a model with 2/5 accuracy.  She was unable to participate in two syllable detection (ex. starfish, take away the fish = star).  These difficulties indicate a phonological awareness deficit.”
  • (I have to add that she scored really high on determining the relationships and associations of objects meaning she understands the meanings behind words: vocabulary.)

Interventions:  Private speech therapy 1x per week (utilizing movement and visuals) with daily reinforcement continued at home, listening therapy (“Sonomas Listening Program”), continued daily sensory diet.  Homeschooling for academics and small playgroups with parental support for social skills.


(From that point on we continued speech therapy until Hailey was almost 9.  She was diagnosed with Auditory Processing Disorder and we still continue to use strategies for accommodating auditory processing disorder.  She was further diagnosed with Dyslexia and Visual Processing Disorder.  She did visual therapy to help with the visual processing disorder and we hired a private reading specialist to teach her the Lindamood Bell LiPS program.  We pulled her out of public school after the special education preschool program ended and they wanted to mainstream her into kindergarten without support.  She has been homeschooled ever since and continues with her sensory diet as needed.)


*As you probably noticed, Hailey’s receptive and expressive language skills were noticeably problematic for her from a young age.  Not all children with auditory processing disorder have such extreme problems with language.  However, for her, we believe her extreme auditory processing problems were the reason she had such difficulties with language.

So this is NOT a portrait of what all children with auditory processing disorder look like at a young age.  It is one portrait and maybe it will help others who see similar things in their young children to find some help and start on a path to answers for them.



Wednesday, April 4, 2012

Happy APD Awareness Day

In 2009, a Minnesota teen named Megan Muehlberg (2012 Miss Minnesota Teen Internation 1st Runner Up) worked with former Governor Tim Pawley to make April 4, 2009 a statewide Auditory Processing Disorder Awareness Day.

To follow in her tradition, the APD support groups on Facebook (combined to be over 1000 members), have decided to spread the word internationally and "Break the Silence on this Silent Disorder" by honoring April 4, 2012 as International APD Awareness Day (even if no official has proclaimed it - maybe we can work on getting that recognition next year).

Two amazing teenagers with Auditory Processing Disorder created these images to spread across the internet:


APD Teen 23  (her blog is: APD Teen)





Saturday, March 17, 2012

Friends Like Me: How Facebook United Kids with Auditory Processing Disorder

Friendship is born at that moment when one person 
says to another, "What! You too? I thought
 I was the only one!" by C. S. Lewis 

Good friends really do make such a difference in one's life.  A few months ago, some of the mothers in our Facebook support group for parents who have children with Auditory Processing Disorder (APD)* decided to get our children in contact with each other.  We live around the world, but a group of us all have girls around the same age with APD.  Inspired by a group of teenage girls we know who have APD and have expressed how much their friendships with each other have been so beneficial to them, we had our girls start writing to each other. Gradually they started to get to know each other and recently they started to Skype and text with one another. It has been fantastic!

If you've been following my posts on this blog, you will remember the post I wrote about Maslow's hierarchy of needs.  One of the important foundations for building self-esteem is to provide a sense of belonging.  Having a processing difference/learning disability can sometimes make fitting in with the other kids a difficult thing for our children.  Many a parent can tell you how our children regularly express the feelings of being singularly different and no one truly understanding what life is like for them.  So providing our girls with not only other people who have APD, but girls their own age who have APD, has provided them with a sense of belonging that goes beyond what any of us probably ever imagined.

So thank you Mark Zuckerberg for creating Facebook!  I know Mark never intended or even imagined that Facebook would be helpful to a group of children with Auditory Processing Disorder, but in an indirect way, it has connected people who would not have otherwise even met.  (Also thank you Niklas Zennstrom for creating Skype which connects our girls face-to-face.)


* The group is for both parents of children with APD and individuals themselves who have APD.  My post from February 27, 2012 has the names of these groups for anyone who is interested.


Wednesday, March 7, 2012

APD Awareness: Having APD is sort of like Speaking a Foreign Language

Auditory Processing Disorder (APD) can be subtle and because of this, children with APD are often penalized as being non-caring, not-intelligent, and/or not-attentive.  The reality is so far from this non-understanding viewpoint.

Imagine if you can being in a foreign country.  You know the language to some extent, but you have to process everything you hear from the foreign language to your native language to understand and back to the foreign language to communicate.  It takes time.  Sometimes the person speaking to you doesn't realize this time delay and they speak too rapidly for you to process everything.  Or maybe people are speaking over each other and it is difficult to hear exactly what is being said.  So you process about 2 to 3 words maximum out of every sentence.  You try piecing this fragmented information together to make some sort of sense.  Of course by this time the person speaking to you thinks you are rudely not responding.  Then, when you do say something, the person looks at you like you are a complete idiot because your response is actually not accurate for the conversation.  You try to apologize and explain that you speak a different language and you're doing your best.  But what if they don't believe you?  What if they think you are simply  non-caring, not-intelligent, and not paying attention?  This happens to people with APD all the time!

Of course, just like you can translate the foreign language if given the time you need to do so (and maybe some clarification here and there), so can our kids with APD.  You can also speak intelligent sentences and express your wonderful thoughts and ideas even in the foreign language if given the time to do so.  Sure you might forget a word here or there or conjugate a verb incorrectly, but that's really no big deal so long as the person you are speaking to is understanding and patient.  It is no less important that our children with APD have people be understanding and patient with them.

It is my hope that the world becomes aware of Auditory Processing Disorder and uses that knowledge to show compassion to people with APD.  Be understanding!  Be patient!  Give them the time and respect they need to shine!  They ARE intelligent, attentive, and caring.